It has been a long time since I have written an update. I apologize for that.
Since I have been basically back to normal I have not had the inspiration to write and tell everyone that I am doing fine.
I probably should have.
My time since my last update has been filled with lots of fun and busy, busy days. And what I guess would be called the daily stress of life.
I struggled with getting back to normal for most of May and June. Even though I was still recovering from the treatments I felt I had to get right back to work, and life. This was very hard for me for a while. A lot of things seemed trivial, compared to where I had been.
I also had to pick up all the items I had dropped in the past two years. Working on house projects, Work projects that have been in the wings for way too long, along with all the other details you just don’t think about.
My overall recovery has been rather easy. Though I know I will have long-term side efforts from the 19 chemos, bone marrow transplant and radiation. But I now I have a lot more time to deal with them later.
But listen to me I sound like it’s harder to live than to anticipate dying.
I have been working out and playing soccer a lot and feeling rather good. Both physically and mentally.
I also had a second scan in Sept that came out clean. Though I really thought it was going to be.
So I never wrote a thank you letter to all the wonderful people that helped me out. I feel really bad about that. I guess I forget things quickly. Just wanted to get back to “normal life.”
The last couple of months I have been a bit more reflective than previously. In late October was my “anniversary” of getting out of the hospital from my second Bone Marrow transplant. It made me think about the difference a year makes.
I am so lucky it is hard to explain. Even without this miracle drug (which I will take until mid January) I have had just a wonderfully time L-I-V-I-N.
My last 6 months and really 8 months since I started taking this new drug have been spectacular. Even though I can’t say I have lived every moment of every day as if it was my last. (something I think I promised here once.) I have done a ton of fun things and visited a lot of my friends and family.
Here is a quick list:
· Ran the San Juan River with great friends and a wild 30th bday party.
· Ran the Middle fork and Main Salmon with my long time Friends Ari and Josh. And was able to have a great 32nd birthday bash for myself on this great river.
· Got back on a commercial river trip in Desolation canyon. Which is the river of my childhood. And again it made feel like a wonderful child and why I love taking people down the river.
· Visited family in New York for a cousin's wedding. Just a great trip of love and fun family events.
· Visited New Hampshire and my college roommate Todd. Also “played” my first 2 days of golf in a row. (something I picked up to “retire”)
· Spent a wonderful week in Telluride for a friends 40th birthday part.
· Went to my first professional football game. Even if the broncos’ did not play like it.
This does not count all the times I have spent doing the “mundane” things that I love. Playing Cards with my friends, Mountain Biking, hiking with Lulu, Wednesday night Soccer, Sunday coffee on my porch, and more little things than I can think of.
Last summer/fall seems like a blur of hospital rooms, pain, sadness and loneliness. There were many nights last year when I could think of nothing more than what I am going to do for the next 3 weeks.
I guess really this little email is to tell you I leave for the Grand Canyon tomorrow! I picked up this permit almost 2 years ago. At the time I just wanted to make the trip as maybe a last hurrah.
But now it is a celebration of life trip and I could not be happier for it.
Since I should have notified all of you of my clear scan in Sept. I thought it was at least appropriate to let you know that I am getting back to things I love. With only three more treatments, I hope my final email will be in two months to tell you I have a final clean scan and I have been through the last of my treatments.
Thank you for all your support .