The Latest Update on Arlo
It's been a long time since I have written an update. I have been enjoying my free days and not really thinking about updating you.
I left Salt Lake on September 2. The dr did not want me to leave. My WBC had drop to a very low level. I had to do a very large charm job and promise not to go rafting. They also gave me a Neupogen shot which help increase WBC.
On Tuesday the 6th I went into the hospital in Moab to get my WBC check. The WBC had jumped to normal levels which was great news. Otherwise I would have needed to go back to SLC for a while.
I have been really enjoying my time home. I even worked a couple days in the last weeks. My biggest issue is stress at the end of the day. Each day I lay down thinking I have not "lived" or done enough in that day. I know that sounds odd and not something I have ever thought about.
I've had to stop myself from tearing apart my house. I have all these new ideas from living with Dasch and Meg. My brother talked me out of taking down walls, tearing out carpet, and putting in a new counter top. "arlo you just got out of the hospital you don't want to live in a construction zone while you're home, do you?" So instead I moved all the appliances, and painted several rooms.
I have also been enjoying the town of Moab. There are always so many fun events going on in Moab. I was able to attend the farmers market, Bad Art show, birthday parties and have all the boys over for a Sunday football party. This past week I was able to play a couple hours of soccer. This was the first time I did anything really active since February. I could feel my lack of strength and my lost lung capacity but felt good overall. Not bad since I'm only 3 weeks out of the hospital. I am really sore today.
I went to SLC to get a CT test done on sept 12. The test really did not tell me anything. It showed that my lymph's had shrunk but are still larger than normal. This could be from dead cells and may not be from cancer. So in the end this test told me that the 2nd BMT is a good idea. To be honest I think the cancer is not gone. I can still feel my lymph under my left arm.
My timeline has changed a little bit. I will go to SLC on Thursday sept 22. For a radiation simulation. The 2nd BMT has three days of radiation two times a day. The next day I will meet the dr to go over the details of the process and sign waivers. Then On the 25th I will start a drug to help fortify my gut and intestines. I will take this drug for three days. On the 28th I will be admitted to the hospital. I will also get my 4th line and start the radiation. I will get this for three days. After that I will get 3 more days of Chemo and hopefully that will be my last. One day of rest then I will get stem cells from there. Then it's recovery time of about 10-14 days.
Ok this photo is from a couple of winters ago but it is Moonflower Canyon.
I am very happy to have come home for this little time. In fact I'm writing this update in beautiful Moonflower Canyon watching my dog chase sticks. Is that not what life is about (except maybe the part of me typing on the laptop in the middle of a canyon.) In reflection I feel I have really taken advantage of my time home. I do still wish I had more motivation and energy. I have so many projects I want to do that it causes me some stress. Every time I go into work I look at my pile of stuff I need to do and get a little heartburn.
I'm not really looking forward to going back into the hospital but I feel much better about it than I did 3 weeks ago. I'm a little excited about going in knowing that this should be the end of it. I am nervous that the second BMT will not be as "easy" as this last one. I worry that I will have a longer recovery time.
That is really all that is happening. I hope I can do another update when I'm in the hospital but I'm not sure that will be the case.