25. September 2013 11:54
This will be a much quicker email from last weeks. And that is a good thing.
I went to SLC on Wednesday Sept 18th, to do another treatment and a CT scan. The CT scan was on Weds and the treatment would be on thursday.
The CT scan went fine except the nurse had to stick me twice. And on the second one she said "well I think it's in there." At this point my veins are rock hard and it seems to be very difficult to get to the obvious ones. The contrast that they give you beforehand is terrible and I had to start drinking it two hours before the 7pm test. Which meant drinking it on the drive up through twisty roads. Lucky for me I had a driving partner that liked to remind me "It's time to drink!" and "One more sip!" The other hard part is the IV contrast they give you while you are in the machine. The last two times I thought I was going to throw up afterward. It makes you feel like you just pissed your pants. This time was worse than anytime before. I did not throw up but felt terrible for a couple of hours.
The next day the we went in around 10. They take 12 vials of blood every time I go in these days. This time the nurse hit the vein on the first try. But that might be because my accompanying friend, Alycia, threatened the nurse. The nurse looked at each arm twice "to be real sure."
When I met with Dr. Halwani he was down right giddy. He said the response in Hodgkins patients has been doing really well over the study. Even Alycia commented on the doctors mood "Is he always like that?" He also said the CT scan showed no Pneumonia. He had to talk the drug company into keeping me on the study.(or at least that is what he told me.) Staying on the trial is obviously a very good thing. He said I most likely will take about 10 total treatment, but really it is just guess. I should not expect any really improvement until week 8.
Sadly the CT scan had not been transcribed by the radiologist by the time I saw Dr. H.
I went to infusion at around noon. I was there for about an hour. It went really smooth except for losing a game of Battleship to my friend. (I know can you believe she did not let me win?) That is how I wish every infusion went. How far it has come from 3 years ago, puking on the "Red one" of the ABVD chemo.
On the way out of the infusion center the coordinator gave me the CT scan report.
It took me a couple times of going over it but all the tumors seemed to have shrank!
The largest tumor went from 3.3x1.3 cm to 1.9x0.07 cm. this is of course a great sign. Kind of wish I could have talked to Dr. H about it but it does give me a lot of hope. Of course the PET scan before the 4th treatment will be the most important. The tumors were not big but were very active on the last PET scan. After the treatment I had no reactions and felt very good. I even was able to have dinner with Dasch and Meg. Which was the first time since I had my worse scan in Feb of 2012 that I had seen them. It is kind of funny to reminisce about my last time in SLC fondly considering why I was up there and how hard some of that chemo was on me.
I still feel great. In fact I think I feel better than I have. But that might just be in my head, which really does not matter does it?
Ok that is all. I have another test on Thursday Oct 3rd and I will write again then. Hopefully it will be short.
Thank you all for your support and love.